Lactose Intolerance

What is this site about?


When this site was first developed very little was available on the net for people in the UK and Europe who suffered from Lactose Intolerance and dairy allergies. The site was created to provide a resource of information on products and other groups who could offer help and advice not readily available from Doctors and other health professional.

The site now provides information on where to purchase the ever increasing number of dairy free products and most important of all, make our doctor's and those in the medical profession understand that many complaints may be food allergy related, rather than putting these problems down to behaviour and how our children are brought up.

The sites listed in this section are a mix of private and commercial interest sites that may be of some help. Further commercial sites can be found by clicking here

There are a number of self help groups available and I've listed some that you can contact who will be able to give you advice and help, although many of them deal with all types of allergies, they do have members and advice for those of you with LI. Why not contact them, they are run by volunteers, so please be patient and remember to send a stamped address envelope at all times.

Index to the links
UK sites
US sites
Australian sites
New Zealand sites
Canadian sites
French sites
German sites
Swiss sites
European Sites
Advice sites


Sites


UK flagUK SitesUK flag

Foods Matter Formerly Inside Story, Foods Matter is produced by Michelle Berriedale-Johnson. The site is full of very useful UK based information and is a must for all UK allergy sufferers. A monthly magazine is produced with about 80% of the readership being lay sufferers. The subscription rate is £39.95 per year (£29.95 if you pay by standing order or ongoing credit card). This site is well worth book marking.

For further information please write to Foods Matter,  5 Lawn Road, London NW3 2XS, Tel.: 020 7722 2866 or Fax.: 020 7722 7685 Email info@foodsmatter.com
 
Helen Stephenson's Page Helen has produced an information page for UK suffers of allergies with a range of sites and useful information, do give it a visit.

The Digestive Disorders Foundation now called Core The Digestive Disorders Foundation is the only national charity which is concerned with all forms of digestive disorder. Their aims are to fund research into digestive disorders, provide information for sufferers, their families and friends and to increase public and professional knowledge of digestive disorders. Although not purely about LI and allergies the site does have some useful information.

Dave Elsworth Paediatrics Lactose Intolerance Page I'm please to say that the UK now has another LI site. Well worth visiting and book marking for future information.

The Vegan Society Not really a departure as Vegans are totally animal free in diet requirements and therefore dairy products are not an option in a vegan's diet. This site is very useful and well worth visiting for the large amount of information on UK products and suppliers.

Down's Syndrome Research Once again another area I never thought of but found very interesting. This site is for people with family members who have Down's Syndrome. However, the site reports that people with Down's Syndrome may have an increased possibility of Lactose Intolerance and milk allergies.

Genetic Interest Group Society For more information see helpline section. GIG is a national alliance of organisations with membership of over 120 charities which support children , families and individuals affected by genetic disorders. This site is suitable for those looking for information on galactosemia.

Contact a family Contact a family aims to bring together groups, families and individuals affected by Rare Disorders. The organisation aims to help provide clear information, advice and bring people together who have the same rare disorders.This site is suitable for those looking for information on galactosemia.

Climb - Children living with inherited metabolic diseases. Formerly called Research Trust for Metabolic Diseases in Children, Climb is a national umbrella organisation working on behalf of children and families affected by metabolic disease. The group provides emotional and practical support, information and advice and by funding much needed research. This site is suitable for those looking for information on galactosemia.

Allergy UK (formerly British Allergy Foundation) This site is excellent for information on testing and allergy products (mainly for asthma sufferers). For the Doctors and health professional, visit the site for links to further studies in allergies. The site deals with all aspects of allergies not purely food related. Well worth visiting.

British Society for Allergy and Clinical Immunology This site is not for patients but for helath professionals, and is linked to the BAF site above.

Food can make you ill The site has useful information on a number of foods that cause allergic and sensitive reactions. Plenty of good research reports on food allergy/intolerance.

Purer foods Full of useful information and an interactive directory of food products this is one you should bookmark.

Tiger White This is a commercial site which imports Horchata de Chufa from Spain previously under the brand name of MIAM. Now called Tiger White and available in Holland and Barrett and Tesco's. This is the first time this drink has been available in the UK despite having been popular in Spain for hundreds of years. It tastes and looks rather like a sweet nutty milk, but contains neither nuts nor milk. It's very nutritious and refreshing, is made from completely natural products (no artificial additives). It can be substitute for milk on cereals or even in custard.Visit the site for more information and and selection of recipes using Miam. The drink is now mixed with apple juice and is available sweetened and unsweetened.

foodsensitivity.co.uk Food Sensitivity Remedies TM Ltd is a British based company producing Bio-energetic remedies for people with food sensitivity. They also arrange tests for food sensitivities.

Galactosaemia Support Group - UK A useful site for Galactosaemia sufferers site is not updated that often but does have some useful information.

Allergy clinic This is a general allergy site written by a doctor. The site covers all aspects of allergies from hayfever to food allergies. It explains symptoms in easy to understand terms and includes advice on various treatments available. Well worth a visit.

Dietary Cards The site was set up to provide translation cards for coeliacs however it has expanded to cover a variety of food intolerances/allergies. There is a choice of 2 texts. One stating the holder has an intolerance that will make them ill, the other stating they have and allergy that is life-threatening. They are conveniently supplied individual translation or in a wallet containing the five main European languages, and are credit-card style.

Eczema Voice A lovely information site for people and especially children with Eczema. Do give it a visit.

www.forparentsbyparents.com looks at all the life changing elements of parenthood, even the grim bits...so we hope that it truly reflects the reality of being a mum or a dad today. Through the sharing of personal experiences, parents offer support, reassurance, information, ideas and practical solutions.



Lactose.co.uk This is a comprehensive site now with a cart to allow you to buy Lactase drops and capsules.

The Allergy Site This is an very good general allergy site covering not just food allergies but also eczema, hayfever, plastics/latex and hyperactivity. Well worth visiting.

Milk Free Kids An excellent site full of information, recipes and a chat area. Nice to see a site in the UK dedicated to milk allergic children.

Allergy Action This site is run by Hazel Gowland, Food advisor to the Anaphylaxis Campaign. The site is packed with information for people with allergies but is also aimed at the food providers and has very helpful guidelines on dealing with customers who have serious food allergies.

 Food Free From A useful web based directory of places to eat that cater for people with special dietary needs.

new IBS Tales Read the personal stories of irritable bowel syndrome sufferers and share your own experiences.
 
Register for food allergy alerts from alert4allergy.org to receive free email and text alerts of product recalls and other incidents where foods have been wrongly labelled or contaminated with peanuts, tree nuts, milk, gluten other allergens placing those with food allergy and anaphylaxis at risk.

US flagAmerican SitesUS flag



The No-Milk Page An excellent site full of information. Also plenty of links (some reproduced here), but bear in mind most of the information is US based. The site also has an excellent mailing list service. How to join the mailing list

Kirsten's Lactose Free website Plenty of American information and advice on Lactaid, take a look and see what's available in the States but not over here.

Hymie's Lactose Intolerance Headquarters Not much there now Hymie has not updated for a long time.

Steve Carper's Lactose Intolerance Clearing House This site has recently been updated and is well worth a visit. Steve wrote the book Milk is not for everybody: living with lactose intolerance.You can buy the book from the Dairy free Bookshop Click here for the shop's front door

Food Allergy Survivors Together Another interesting group of people who produce a mailing list. The group deals with all food allergies and can be useful to visit.

Food Allergy & Anaphylaxis Network Although this site is not solely about LI it is well worth a visit and is full of information and especially food alerts. Do visit.

Milk alternatives An interesting site that looks at how to make alternatives to cow's milk. The site is aimed at beating the milk subsides in the US but the information is useful.

Dodging dairy: handling food allergies This is dated May 1995 from the San Diego Earth Times. The page talks about alternatives to dairy products including cheese, milk, etc. Most of the information is around on this site as well as others.

Lactose Intolerance This site is part of the National Digestive Diseases Information Clearinghouse. This is a site worth visiting for basic information and often repeated on other sites, but here is the original.

ADHD and Living Milk-Free This site is for people who are celiacs, however it is full of useful information on milk intolerance as related to celiacs. If you suffer from wheat and milk intolerance take a visit.

Teens With Crohn's Disease This is an excellent site for teenagers with Crohn's Disease. It's full of useful information, recipes, and a chat room.

Lactose-Free Lady This site belongs to the author Sheri Updike who wrote "The Lactose-Free Cookbook" Sheri's book is available in the UK and the information on the site is excellent. Do visit.

Spanish Medical Translations This is a new link to an excellent medical translation site dealing with all aspects of health and useful for those about to holiday in a Spanish speaking county.

The Mind-Body Digestive Center The site has a lot of resources and information on the mind-body link of digestive disorders such as Irritable Bowel Syndrome, and many other diseases including women's health issues and Fibromyalgia. Their treatment protocol looks at the experience and meaning of having IBS in a person's life. We are concerned with how the mind and the body are linked, including IBS symptomatology, family background, current relationships and ongoing sources of life stress.

Irritable Bowel Syndrome Treatment Information on the range of treatments available for IBS, from drugs to alternative therapies.



Aus flagAustralian SitesAus flag

Lactose.com.au A site still under development but full of useful information and advice well worth visiting.

New Zealand flagNew Zealand SitesNew Zealand flag


Allergy New Zealand An excellent New Zealand site covering various allergies.
Canadian flagCanadian SitesCanadian flag


Calgary allergy Network The site provides practical information and resources to anyone dealing with asthma and allergies, particularly potentially life-threatening allergies.

Silk Soya Beverage Canadian Soya drink with recipe page.

Canadian Allergy Foundation In both French and English the site has infromation about a range of allergies and Lactose intolerance. 

French flagFrench SitesFrench flag


French Food Safety Agency Pages on food allergies in French and English

Yoplait The French yoghurt and milk based drinks, however interest information on food allergies.

German FlagGerman SitesGerman Flag
Internet Symposium on Food Allergies This is an excellent information site. Aimed at the medical profession but full of useful Food allergy information including a large amount on Lactose Intolerance.

Swiss FlagSwiss SitesSwiss Flag
F.O.O.D. - Food allergy F.O.O.D. is a Swiss site with an interesting range of European information topics, worth visiting.

EU flagEuropean SitesEU flag

European Galactosaemia Society The European Galactosaemia Society is a support group for persons and families with the metabolic disease Galactosaemia. Their main aim is to share information and promote awareness of and to stimulate research into Galactosaemia within Europe.They have links to other organisations in Europe dealing with Galactosaemia.

Non Lactose Intolerance sites
As well as the above list of sites I have included a section on non lactose food sites, medical search engines, other sites and search engines you may like to try. Click here

Advice



National Society of Research into Allergy PO Box 45, Hinckley, Leics LE10 1JY
The society produces a range of booklets and plenty of advice on all forms of allergies and where to get hold of a range of elementary foods and digestive enzymes by mail order. And a list of local allergists.

Allergy Induced Autism 3 Palmera Avenue, Calcot, Reading, Berkshire, RG31 7DZ. Tel.: 01189 419460.
Office hours are Monday to Friday 9.30 am - 3 pm. Also can be contacted through their web site Allergy Induced Autism.

Genetic Interest Group Unit 4D, Leroy House, 436 Essex Road, London N1 3QP. Tel: 020 7704 3141, Fax: 020 7359 1447
This group deals with genetical caused illness. GIG have a database of individuals and groups that are available to give you help and advice on genetic disorders, a very useful site. GIG site or email mail@gig.org.uk

Anaphylaxis Campaign PO Box 149, Fleet Hampshire, GU13 9XU, UK Tel.: 01252 542 029 Fax.: 01252 377 140.
Please remember to send a large stamped, self-addressed envelope for more information. There is also a web site Anaphylaxis Campaign on milk allergy. The link will take you to the section dealing with milk allergy, you can then travel around their site. Do visit it.

Food and Chemical Allergy AssociationThis is a small volunteer organization, The organization deals with all forms of chemical and food allergies and advice is readily available.

Action Against Allergy PO Box 278, Twickenham, Middlesex, TW1 4QQ Fax: 020 8892 4950
The organization produces lots of information about all forms of allergies and also where to find the nearest allergy clinic, NHS/private specialist and specialist State Registered Dietitian. They also produce a very informative newsletter. Again this is a small charity run by volunteers please if you write to them send an SAE. Membership is £UK10 per year and they provide an excellent newsletter 3 times a year. The AAA also provide information packs on a number of subjects at UK£2.00 each and a suppliers list of health and home care products for allergy suffers at UK£2.50 (inc.P & P). They also produce a very comprehensive book list for all allergies and they are available from Merton Books PO Box 279 Twickenham Middlesex TW1 4XQ

Hyperactive Children's Support Group, 71 Whyke Lane, Chichester, Sussex. PO19 2LD. Tel: 01903 725182 Fax: 01903 734726. For hyperactive, allergic and learning disabled children. Visit their site Hyperactive Children's Support Group.

medic-alert Medic-alert Foundation 1 Bridge Wharf, 156 Caledonian Road, London N1 9UU. Tel.: 020 7833 3034. Freephone 0800 581420
This foundation, for those who don't know, supply bracelets and necklaces which will give a warning about your allergy, and is especially useful if you suffer extreme reactions to any dairy product or if you are anaphylactic.
The bracelets cost £30.00, however, the foundation is supported by the Lions Organization and if you live in the British Isles or Ireland sponsorship is available for those on limited income to obtain a bracelet.

new The Yellow Cross Company WW Unit 1, 5 Highclere Road, Knaphill, Woking, Surrey GU21 2PN. Tel/Fax 01252 332005 www.yellowcross.co.uk to email contact them on info@yellowcross.co.uk

This company produces a range of safe and secure travelling containers for personal medicines, particularly for medicines required in emergency situations and for those needed on a regular basis. Refrigerated medicines can be kept cool for long periods of time in our Ultimate Coolbag which can also provide for special diets and they also produce a range of translation cards to help explain your allergy in a range of languages, ideal for those holidays abroad.www.translationcards.co.uk/

new Kidsaware P.O. Box 115, Bedford. MK44 2FA Tel: 01480 869244 Fax 01480 861 143 email: sales@kidsaware.co.uk
Kidsaware, sells a range of products aimed at helping young children with nut allergies avoid contact with nuts. Products include t-shirts, sweats, stickers, caps, badges and bags. The items carry slogans such as "Have a nut free day" and "Nut Free Zone". They have also recently introduced stickers for children with milk, egg and other allergies as well as bags suitable for carrying medication that can be personalised.

Helpline


This is a range of contact numbers in the UK for information about products and general information.

goatBritish Goat Society34-36 Fore Street, Bovey Tracey, Newton Abbott, Devon TQ13 9AD. Tel.: 01626 833 168. Registers all goat milk products in the UK and all herds.

goatCirval. This is a French based site looking at all aspects of goat and sheep husbandry and milk production and products from small ruminants. Cirval.

This page has been visitedcounttimes since 3 March 1998. Thanks for the support.


The page was last updated Saturday, 14-Mar-2009 20:29:11 GMT